Click above to listen to my radio interview for the Children's Miracle Network that supports our local children's hospital.
Better get out the tissues first. I apologize for the quality but you'll be able to hear ok.
Noah was diagnosed in utero with Dextracardia (heart on the right side), an ASD
and VSD, Left Transposition of the Great Arteries, Patent Ductus Arterious, Pulmonary Atresia and Ventricular Inversion. He
was born 4 weeks early by c-section at 10 pounds, 14.6 ounces, not the typical heart baby. At 23 months, Noah was scheduled
for the Fontan completion. He was 35 inches tall and 35+ pounds!! He adored Elmo, numbers and barking at the mailman with
his "bad dogs". His smile and laugh could light up a room. We were constantly amazed at his love for others and his joy in
the little things. Noah didn't tolerate the fontan, resulting in a takedown. He passed away in his father's arms 11 days before
his second birthday due to complications from surgery. Raising awareness of CHD's is a very important part of our lives. We
have organized a local support group for other families battling CHD. We go forward in remembrance of our sweet boy. He was
a precious gift. We are thankful of the hope we have to hold him in our arms again some day.
